In 1983 a handful of parents founded the Lowe Syndrome Association (LSA). The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome, a rare genetic condition that almost always affects only boys.
Our Mission
Improve the lives of persons with Lowe syndrome and their families through fostering communication, providing education and supporting research so that individuals can attain their highest potential.
We will accomplish our mission by:
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Fostering communication among families who have a member with Lowe Syndrome
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Promoting a better understanding of the syndrome and the potentials of individuals with this condition
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Providing medical and educational information
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Encouraging and supporting research relating to Lowe Syndrome
URL: | http://lowesyndrome.org/ |
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