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ADA Live! Episode 75: Supported Decision-Making: From Justice for Jenny to Justice for All!

1:00 pm EST December 04, 2019   |   Organized by: Southeast ADA Center

Description

Before her rights were taken away, Jenny Hatch had her own apartment, worked, spent time with friends, and went to a church of her choice. After a court ordered her into guardianship, Ms. Hatch found herself in a group home against her will with her cell phone and laptop taken away, cut off from her friends and not allowed to go to her job and church.

On this episode of ADA Live!, Jonathan Martinis discusses his new book,” Supported Decision-Making: From Justice for Jenny to Justice for All!” Martinis, along with Dr. Peter Blanck, tells Jenny’s story including how she lost her rights under guardianship and how she won them back when she showed the court that she uses Supported Decision-Making (SDM) to make her own decisions with help from people she trusts. They also show how you can use SDM in your life, with family members, or people you support, including in programs like Special Education, Vocational Rehabilitation, and Person Centered Planning.

In 2019, the National Council on Disability (NCD) reported that between 45% and 55% of people with Intellectual and/or Developmental Disability (ID/DD) are under some form of guardianship. “Supported Decision-Making: From Justice for Jenny to Justice for All!” is a practical guide for family members, human service professionals, and people in or facing guardianship.  Martinis and Blanck hope that people with disabilities and their families, friends, and professionals will use this book to help develop customized Supported Decision-Making (SDM) plans that protect the rights of the individual with a disability and empower them to make their own decisions.

Have a Question: Submit your questions for: Supported Decision-Making: From Justice for Jenny to Justice for All!




Jonathan Martinis

Senior Director for Law and Policy, Burton Blatt Institute

Jonathan Martinis, Esq., J.D.is Senior Director for Law and Policy with the Burton Blatt Institute at Syracuse University. He leads BBI’s national and international efforts to ensure that older adults and people with disabilities receive appropriate supports and services, including Supported Decision-Making, to lead inclusive, independent, and self-determined lives.

BBI Chairman and University Professor Peter Blanck notes that “Martinis has devoted his career to representing people across the spectrum of disabilities, and their families and supporters, to protect their human and legal civil rights under the Americans with Disabilities Act (ADA) and other civil rights laws.”

In 2013, Martinis represented Jenny Hatch in the nationally acclaimed "Justice for Jenny" case, helping Ms. Hatch secure her right to live where and how she wants, to make her own decisions, and direct her own life. Jenny’s case was the first trial to hold that a person with disabilities has a right to engage in “Supported-Decision Making,” where people work with trusted friends, family members, and professionals to help them understand the situations and choices they face, so they may make their own decisions – rather than be subjected to a unnecessary permanent, plenary or full guardianship.

Since the Hatch legal decision, Jonathan has presented to and trained thousands of individuals, families, advocates, attorney, professionals, and service providers about everyone’s Right to Make Choices and direct their own lives, while receiving the services and supports they need to do so.

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